Announcing the US HAEA Scientific Registry

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US Hereditary Angioedema Association Scientific Registry 
Patient Driven Research for a Cure!

Your HAE Association is hard at work on behalf of the HAE community.

We are asking each and every HAE patient to participate in The US Hereditary Angioedema Association Scientific Registry-a new and important project that will promote hereditary angioedema research and put us on the path to a cure.

HAE patients and their blood relatives that do not have HAE are eligible to participate in the Registry. The Registry is currently open only to residents of the United States. 


Participants in the US Hereditary Angioedema Association Scientific Registry will be asked to remain in contact with the Registry for at least five years and be willing to:

*        keep their records up to date
*        donate two blood samples and one swab of cheek cells,
*        provide a general medical history, and
*        provide additional samples if needed.

This program cannot take place without the commitment of our HAE patient community!  That's YOU!

Here is how to get involved: 
               
    ●  Check the US HAEA webpage at www.haea.org and click on the Scientific Registry icon.
        You will find more information on participating in this vital research project as well as an online registration form for your convenience.

If you have any questions, please contact the US HAEA Scientific Registry by sending an e-mail to scientificregistry@haea.org or call 866-798-5598 and ask for the Scientific Registry Administrator.

We appreciate your dedication to the US Hereditary Angioedema Association and the vision we all share - to find a cure for HAE...